How to improve the lives of persons with spina bifida and hydrocephalus?

 

In order to reduce cases of children with spina bifida and with hydrocephalus, the following interventions are recommended:

 

1. More sensitization is necessary to improve accessibility and inclusion of persons with spina bifida and hydrocephalus in society at national and local level. The celebration of world spina Bifida and Hydrocephalus Day is one way to increase awareness in the wider public.

 

2. Public health facilities need to be equipped to the surgical and rehabilitation needs of children with spina bifida and hydrocephalus. 3. Constructions of new buildings should follow the accessibility standards as developed by the Uganda National Action for Persons with Physical Disabilities, while existing buildings can be adapted using these standards.

 

4. More attention to inclusive education in teachers’ education, and provision of education materials fit for children with special needs will assist in creation of a more enabling environment in schools.

 

5. Health workers need to be informed about the specific needs of children with spina bifida and hydrocephalus, and the importance of promoting folic acid use in women of child bearing age. In addition, there should be mandatory food fortification and this would be support y enacting a law to enforce it. Dr. Hamad Lubwama, the public relations officer of Uganda National Action for People with disabilities says that to understand the magnitude of the problem and success of

Intervention, birth defects such as spina bifida and hydrocephalus need to be registered at a national level.

Ends

Leave a Reply

Your email address will not be published.

This site uses Akismet to reduce spam. Learn how your comment data is processed.